A pheochromocytoma and a paraganglioma are rare cancers that develop outside of the adrenal gland located just above the kidney. While a large percentage of these tumors are found to be noncancerous, about 10% of all cases are found to be malignant. Each year, between 2 and 8 people per million worldwide are diagnosed with a paraganglioma and a pheochromocytoma. Anyone at any age can get a paraganglioma, but they occur most often in people between 30 and 50 years of age. Approximately 10% of cases occur in children. Most paragangliomas have no known cause, but some are caused by gene mutations that are passed from parents to children. Paraganglioma cells commonly secrete hormones known as catecholamines, including adrenaline, the response fight or flight controlled hormone.
You can donate to the foundation by visiting our website and clicking on the “Donate” button.
Yes, we welcome volunteers who want to contribute their time and skills to support our mission. Please visit our website to learn more about volunteering opportunities.
Our Foundation uses your donations to fund research, provide more information and education to the public, support patients and their families, and awards scholarships to local high school students pursuing a career in education or medicine.
The foundation has a rigorous system of oversight and accountability to ensure that donations are being used effectively and efficiently. We regularly report on our activities and financial performance to our donors and stakeholders.
